I know searching online for “issues / illnesses” etc can be a dangerous thing BUT since I became a Spoonie – The most important & informative & (to be completely honest) understanding & knowledgeable people, are those living with their own Spoon issues!
For 3 years my legs have (all of a sudden at any moment) presented with a dark red & purple, angry looking lacy pattern – similar to this.
After years of being told – it’s your fault – you’ve been having too hot baths, you’ve got high blood pressure – it may be that, you’ve been standing too long etc etc (all I may say, by different “specialists”) A young lady (in her early 20’s) in the USA enlightened me this morning via an online forum my “real me” visits every now & then…..
(Hence why I’ve removed my name etc from the pic).
This is livedo reticularis – A very real condition!
The funny (funny = annoying) thing is – Even if you look it up on NHS sites & other UK sites – It’s all played down – very much a non-illness, warm up a bit, it’ll get better!
On USA & NZ / Australasian sites, they treat their populace with more empathy & regard & give better descriptions & reasons….
Maybe that’s partly due to the UK’s attack on those who are disabled & ill at the moment?
– Just a thought X
Addendum – I have found one place in the UK that offers good info – THE PDCDS – Its a group founded by GP’s interested in Dermatological care. Funded by pharma companies it seems. BUT they have lots of info on there.