Oh great a NEW problem!

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For the last 2 weeks or so, one part of my leg has, every now & then felt like someone has poured Lava on it. It happens unexpectedly & the sensation can last for seconds to about ½ an hour (longest so far). usually when I move, or if I walk into the garden & the cool air hits me (something I usually love!).

I put it down to the leg where it is happening, being the leg I had a major op on 20 years or so ago and the nerves were damaged – they took about 8 years to work after the operation.  I was thinking maybe the nerves were playing up again ( I know, I was just refusing to feel another problem & was looking for an excuse).

So today the skin feels like its being stretched & lava is pouring down one side of my leg… So Google it is (You see another great thing about Fibro is – Google & Fibromyalgia support groups really DO know more than Dr’s, so I knew I’d find what this bloody horror was).

And here it is!

Around 50% of people with FM suffer with skin problems according to Dr Mark Pellegrino from Canton, Ohio, who has treated over 20,000 fibromyalgia patients. “Patients report tingling, numbness, crawling sensations and a burning or sunburn type feeling,” he reports. “The main skin symptoms you will see on examination are areas of dry, flaky skin, non-specific red rashes, blotchy or mottled skin and bruising.”

I have mottled legs on occasions, that’s been a very “pretty” symptom for just over 3 years now… One of my Dr’s said I must be sitting in hot baths too often… What an idiot – Anyone who has Fibro knows a BATH of any kind is a luxury… A often very short lived luxury as your bones ache laying on hard surfaces & getting in & out can feel like a marathon task… Plus, we feel extremes of temperature, so NO – It wasn’t that! It was a very well documented symptom of Fibromyalgia.

Easy bruising all over the body occurs often in women with fibromyalgia and sometimes these bruises can be quite extensive and shocking,” explains Claudia Marek, a specialised nurse and medical assistant working with FM patients in Los Angeles. “Other times they are faint, like a dusky ink stain,

On occasions, I have some fabulous ones appear from nowhere – Some days I look like my younger self (that’s a whole other story) – Full of bruises – Nice big purple ones as if blueberries have been squashed on my torso & other times, pretty little yellow spheres, like tiny suns glowing on my arms & legs.

BUT this Lava pain is doing my head in!

So here I land –

Allodynia

Allodynia is believed to be a hypersensitivity to stimuli that would normally not cause pain. The pain can be provoked by a light touch to the skin, pressure from clothing, showering, combing or brushing your hair. Even a light breeze blowing across your skin can feel like agony.

What Causes Allodynia?

Allodynia is considered to be the result of a process called central sensitisation. The pain comes from a malfunction of specialised nerves, called nociceptors1. These nociceptors sense information about things like temperature and painful stimuli right at the skin. For some reason, our nociceptors become chronically activated and send persistent pain signals. Any sensation felt by the skin becomes painful.

Allodynia is a fairly rare type of pain. It is only associated with a handful of conditions. These conditions include fibromyalgia, complex regional pain syndrome, neuropathy, postherpetic neuralgia (shingles) and migraine. Allodynia is also linked to the lack of restorative sleep.

There are three sub-types:

  • Tactile Allodynia: pain caused from something touching your skin.
  • Mechanical Allodynia: pain caused by movement such as your clothing brushing against your skin or the breeze from a fan or the wind blowing across your skin.
  • Thermal Allodynia: pain caused from mild heat or cold temperatures.

So it looks like there are tablets (MORE DAMN TABLETS) that Dr’s prescribe to assist with this – Meds such as Gabapentin – Lourded by the medical profession & hated by 99.9% of Fibro sufferers I have spoken too.

  • Drowsiness warning: Gabapentin can slow your thinking and motor skills and cause drowsiness and dizziness. It is not known how long these effects last. You should not drive or use heavy machinery while taking this drug until you know how it affects you.
  • Depression warning: Using this drug increases your risk of suicidal thoughts and behavior. Talk to your doctor if you feel depressed, or notice any changes in your mood or behavior. Also talk to your doctor if you are having thoughts of harming yourself, including suicide.
  • Multiorgan hypersensitivity/DRESS warning: This medication can cause multiorgan hypersensitivity. This is also known as a drug reaction with eosinophilia and systemic symptoms (DRESS). This syndrome can be life-threatening. Call your doctor right away if you have symptoms such as a rash, a fever, or swollen lymph nodes.

Seriously – read those again & ask yourself – What do you wanna do – Zone out, be no good to your family & maybe even become suicidal or feel even more pain… What a great choice.

So whilst I am glad Ive found what it is – I am devastated also – yet another symptom of Fibro & yet another reminder I really do have this damn illness…

UPDATE – It did get so bad, a Dr’s trip was in order – I must apologise to the Dr’s out there who are listening for my cynicism about the lack of voracity with which GP’s are trying to help people with Fibro… There are some who are trying & my Dr is one.

She saw me this am and knew exactly what I was talking about – prescribing Axsain 

Im starting this today (26.07.17) & am really hoping it will help 😦

 

 

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2 thoughts on “Oh great a NEW problem!

  1. Really hope the Axsain helps. – almost certainly a drug that wasn’t around when I was nursing I would guess and as I was working in mental health for over 25 years, even if it had come out then I might have missed it. Not come across this one yet with my two Fibro clients but good to know about it in case they or others in the future get it.

    I really don’t get why so many health professionals either in the medical system or complementary practitioners don’t listen to their patients/clients. Great that you have a doctor who does!

    Dave

    Liked by 1 person

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