Pushing your Spoonie Self
This poxy diagnosis (I don’t want to say my illness, my disability, because then I feel like I give it power) takes a LOT of getting used to (if you ever do).
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Could’ve been written by me
Full credit to http://fibrowomen.com/my-mom-has-fibromyalgia-reading-this-made-me-cry-for-her/ Chronic pain is increasingly rampant today. However, chronic pain and chronic diseases are often invisible. In many cases there are no plasters, visible rashes or nasal discharge involved. Those who suffer from chronic pain often appear “normal”, perhaps a little more fragile or sad than average. I suffered from chronic headaches…
Painkillers & Medications – or Clarity
Do painkillers work for fibromyalgia? I personally hate taking my painkillers, the feeling of swallowing that many Tablets (as invariably I am taking another or 2 or 6 at the same time as the painkiller) is akin to shovelling garden shingle into your mouth and swallowing it. You can of course do the one by…
An Article that made my Blood Boil
Read the full article here – Could Exercise be the Cure! Sorry – But this really made me angry – What a terrible article . I don’t know about you, but I am so fed up #SpoonieShaming & it sadly often comes from the community itself (who should know better), as well as the people who have…
The punishment for a night out with friends
I ventured to Essex to see friends last night. These are the people who have embraced me in my “Ghost” years when others who have known me for decades have no time for me. These are people who, when I feel life is a bag of crap, keep me going as they make me understand…
Fibro and Work
Having Fibro and trying to complete ESA / PIP questionnaires is like asking a blind man to play darts (Sorry if that analogy upsets anyone) BUT it sort of fits. You see, Stress increases the symptoms, So a difficult day (as practically all of them are) can go from just “difficult” to absolutely devastating in a…
