Medication Alert!

The symptoms of Fibromyalgia are so vast, sometimes changing from day to day, and include such varying maladies such as the staples of widespread pain and tenderness but also including depression, difficulty sleeping, fatigue, back pain, Costochondritis chest pain, Stomach and digestive issues etc etc etc that they can not only interfere with a person’s life…

Letting People Know

One of the most challenging things about this illness is the invisibility.. Believe me, Ive never been a “poor me poor me” person.. BUT sometimes that condescending, even disgusted look that gets shot your way when you cant walk/run/pick something up/open a bottle is so depressing…

So – Do you “come out” as a “Spoonie”?

Pain Clinic Experience continued

Continued from earlier blog So, We had all given our “bio’s” & diagnosis’ while sitting in a semi-circle & up jumped the first speaker – who explained they were a Physiotherapist who was going to work with us to help us understand our pain experience….. (ffs Its not like we’ve bought a bloody Red Letter…

Pain Management Clinic Fiasco

I want to start by saying, I really believe the people running the clinic are truly 100% convinced they are “helping”….. But a 1 size fits all type approach just doesn’t cut it. Not with us “spoonies”. My doctor convinced me to try a “Pain Management Programme” – run by a very impressive sounding “Centre of…

Thank you Facebook Groups

I know searching online for “issues / illnesses” etc can be a dangerous thing BUT since I became a Spoonie – The most important & informative & (to be completely honest) understanding & knowledgeable people, are those living with their own Spoon issues! For 3 years my legs have (all of a sudden at any…