Evenings in your room all alone

Something people with invisible illness have in common, regardless of what illness it is; is the disbelief of those most close to you. The people around you, who you think would be most empathetic & would give you help when needed are most often the cruelest & least understanding. I think this is because they…

Of course I’m stressed, who wouldn’t be!

So this happened… Hospital Appointment, arrived early only to be told I’m booked in to see “wrong” consultant & after a 4 month wait, I’ll need to wait for another appointment. Nice receptionist felt sorry for me, went and asked “wrong” consultant to see me, as wasn’t my fault. Half hour later, told “wrong” consultant…

Fall towards the Sky

Does anyone ever feel like they just need to let go? I’ve had a good many days recently where my muscles have felt like they have been running miles even though I haven’t done anything strenuous at all.. My legs and hands are burning & aching,  my neck, shoulders, back & hips are all screaming at me…

Multiple battles

Sorry I’ve been quiet. Ask the title says, I’m currently fighting multiple battles. My mother’s dementia has progressed and the fight in the UK that you have to go through, just to get the correct care is harrowing. Not only that, people with cognitive illness (as well as other health issues) are seen as a…

Friends are the family you chose

I am so incredibly lucky right now. Someone saw how hard I work for small charities, for my mum, sometimes just to get up in the mornings and chose to do something amazing for me. I am writing this from Tenerife… I am on a 4 day break. The first break I’ve had in over…