So I am feeling restless. I am feeling a change coming. I know I am heading towards something, not quite sure what yet but there are many many possibilities. It’s almost 10 years I’ve been running Celeb FC, literally working for others, Supporting those that need it, without charge… Because I enjoyed doung that. I…
So today I am attending my “2 week emergency referral” appointment at the hospital clinic. This referral actually took 3 phonecalls, and 8 weeks to be seen thanks to the ridiculousness started last year by Covid procedures and perpetuated this year by scared, cow-towing administrators. I have had 2 texts in the last week to…
So im now 5 months after the day when a consultant told me I needed surgery as my deviated septum was leaning so badly to one side – it was no wonder I had had 5 bouts of sinusitis in 2 years & am on constant painkillers & steroid/saline sprays etc. This little gem of…
So I’m sitting here, writing this as I wait to be checked in for my umpteenth hospital visit this year.. Funnily enough ( or not, if you dont have the same sense of black, ironic humour as me) this is not a Fibromyalgia related visit but one that thousands of women dread monthly in the…
Today is a hospital day ( for people like me, 1 of many you attend each year). This one is because of my messed up sinuses – they’ve given me pain and problems for almost a decade but none of my Drs bothered to do more than issue antibiotics… until my new Dr last year……
For the last 2 weeks or so, one part of my leg has, every now & then felt like someone has poured Lava on it. It happens unexpectedly & the sensation can last for seconds to about ½ an hour (longest so far). usually when I move, or if I walk into the garden &…
This is what drives me nuts. Having to attend the hospital for tests after tests after tests. I wish I could just press a reset button and do age 18-now (health wise) all over again. To be perfectly frank. I’m so fed up with prodding and poking I’m getting angry at everything and everyone. For…
Having Fibro and trying to complete ESA / PIP questionnaires is like asking a blind man to play darts (Sorry if that analogy upsets anyone) BUT it sort of fits. You see, Stress increases the symptoms, So a difficult day (as practically all of them are) can go from just “difficult” to absolutely devastating in a…
One of the most challenging things about this illness is the invisibility.. Believe me, Ive never been a “poor me poor me” person.. BUT sometimes that condescending, even disgusted look that gets shot your way when you cant walk/run/pick something up/open a bottle is so depressing…
So – Do you “come out” as a “Spoonie”?
I want to start by saying, I really believe the people running the clinic are truly 100% convinced they are “helping”….. But a 1 size fits all type approach just doesn’t cut it. Not with us “spoonies”. My doctor convinced me to try a “Pain Management Programme” – run by a very impressive sounding “Centre of…
The Fading Ghost / Professional Eccedentesiast
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Behind The Scenes - Life as a Spoonie 