Hospital day

Today is a hospital day ( for people like me, 1 of many you attend each year). This one is because of my messed up sinuses – they’ve given me pain and problems for almost a decade but none of my Drs bothered to do more than issue antibiotics… until my new Dr last year……

Hospital “Again”

This is what drives me nuts. Having to attend the hospital for tests after tests after tests. I wish I could just press a reset button and do age 18-now (health wise) all over again. To be perfectly frank.  I’m so fed up with prodding and poking I’m getting angry at everything and everyone. For…

Fibro and Work

Having Fibro and trying to complete ESA / PIP  questionnaires is like asking a blind man to play darts (Sorry if that analogy upsets anyone) BUT it sort of fits. You see, Stress increases the symptoms, So a difficult day (as practically all of them are) can go from just “difficult” to absolutely devastating in a…

Letting People Know

One of the most challenging things about this illness is the invisibility.. Believe me, Ive never been a “poor me poor me” person.. BUT sometimes that condescending, even disgusted look that gets shot your way when you cant walk/run/pick something up/open a bottle is so depressing…

So – Do you “come out” as a “Spoonie”?

Pain Management Clinic Fiasco

I want to start by saying, I really believe the people running the clinic are truly 100% convinced they are “helping”….. But a 1 size fits all type approach just doesn’t cut it. Not with us “spoonies”. My doctor convinced me to try a “Pain Management Programme” – run by a very impressive sounding “Centre of…